I left the hospital today to switch with Mark for the evening. Right after I left the hospital, they decided to move Maisy up to the 7th floor. That was really unfortunate because everytime they move her, we have to begin again with updating them on ALL of Maisy's info which can take a considerable amount of time.
They started feeding her 10 cc's (1/3 of an ounce) of pedialyte over an hour. She did not tolerate it and is in a lot of pain. She is wretching and miserable again. Poor baby...
The stopped the feeding and started her on zofran for the wretching. Mark didn't have more to say because he was busy comforting her. I will update when I hear more.
Thanks in advance for your prayers.
Sunday, October 4, 2009
some pics!
Day 2--after surgery. Aren't the heart bandages sweet?!
Day 3--not happy with this whole idea of surgery...when she asked to go in the car, apparently she wasn't expecting surgery..
Day 4--the sunshine in her smile is coming back...note her beautiful jewelry!
Feeling much better...day 5
Before surgery~! This is the goal..Sunday Morning Maisy Update.....
Today Maisy is going to be able to start on clear liquids through her g-tube. She finally has bowel sounds and so she can begin on a drip of fluids. Her lungs are doing much better and she is looking great. I want to get her out of bed and upright but I anticipate that she is going to have a hard time standing after all these days of laying flat. She still has so many tubes and wires that she has not been able to move much at all. She actually has not even really tried to move at all. She doesn't seem interesting in drinking anything anymore and so we could use your prayers---that she doesn't have a big setback in her oral feeding/drinking progress that we have worked so hard at these last months.
It is interesting to watch her in the hospital. It is clear that she spent a good portion of her life in the hospital. She positions herself in bed so that she can clearly watch the door and the nurses station. She cries when the nurses come in for fear that they are going to do something that will hurt her and then she cries when they leave the room. I can see the sadness in her eyes--I think those old memories of being left alone so much when she was a baby flood back. Even though I am right beside her (I haven't left the hospital we came on Tuesday), she still holds on to that fear of abandonment.
I am so thankful for the social workers and guardian in Maisy's life. They have advocated for her and all of her needs in a way that it is very evident that they love this little girl and want the best for her in life. Even though the complexity of medical issues were new to them, they have educated themselves to ensure that they have made the best decisions they could regarding her care.
I am so thankful they sought an adoptive home as soon as she was legally free for adoptive home. They didn't have to do that--I am sure the courts would have understood if they kept her in the medical foster home she was in. She was doing well there and many social workers can't even imagine where to begin to look for a home for a child this medically fragile. I am so thankful Maisy came into our life when she did. I know it will take time for her to fully and completely trust that we will be there for her no matter what--but I am confident that she will be there soon. We are getting close to finalizing the adopton--we are so excited to be able to legal confirm what has already taken place in our hearts.
Col 3:20---"and to Him who is able to do immeasurably more than we could ever ask or imagine..." Our Lord has truly brought this Truth to us in living color through Maisy.
It is interesting to watch her in the hospital. It is clear that she spent a good portion of her life in the hospital. She positions herself in bed so that she can clearly watch the door and the nurses station. She cries when the nurses come in for fear that they are going to do something that will hurt her and then she cries when they leave the room. I can see the sadness in her eyes--I think those old memories of being left alone so much when she was a baby flood back. Even though I am right beside her (I haven't left the hospital we came on Tuesday), she still holds on to that fear of abandonment.
I am so thankful for the social workers and guardian in Maisy's life. They have advocated for her and all of her needs in a way that it is very evident that they love this little girl and want the best for her in life. Even though the complexity of medical issues were new to them, they have educated themselves to ensure that they have made the best decisions they could regarding her care.
I am so thankful they sought an adoptive home as soon as she was legally free for adoptive home. They didn't have to do that--I am sure the courts would have understood if they kept her in the medical foster home she was in. She was doing well there and many social workers can't even imagine where to begin to look for a home for a child this medically fragile. I am so thankful Maisy came into our life when she did. I know it will take time for her to fully and completely trust that we will be there for her no matter what--but I am confident that she will be there soon. We are getting close to finalizing the adopton--we are so excited to be able to legal confirm what has already taken place in our hearts.
Col 3:20---"and to Him who is able to do immeasurably more than we could ever ask or imagine..." Our Lord has truly brought this Truth to us in living color through Maisy.
